Nerve Tumours UK

For over 45 years, Nerve Tumours UK has provided support and advice to help the 26,500+ children and adults in the UK diagnosed with Neurofibromatosis (NF), along with their carers, family members and wider support network, which can include teachers, employers and all types of healthcare professionals.

Collectively known as NF, Neurofibromatosis is the medical group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). NF is an incurable, neuro-genetic condition that causes tumours to grow on nerve endings.

At Nerve Tumours UK, we work for the NF Community by funding a unique specialist support network, comprising regional Specialist NF Nurses/Advisors, a National NF Helpline, clinical guidelines, information days, an interactive website, online communities plus medical guidelines/literature.

We are especially passionate about increasing awareness and knowledge of NF amongst all healthcare professionals, so our fully accessible and interactive website has a host of medical guidelines and leaflets, plus a special hub available solely for healthcare professionals to access.

Relevant links
 

Website: https://nervetumours.org.uk/
Regional Nurses Network: https://nervetumours.org.uk/about-us/specialist-nurses/
National NF Helpline: https://nervetumours.org.uk/help-hub/line/
Healthcare Professionals Area: https://nervetumours.org.uk/medical-information